Dwelling In His Richness: September 2017

What's Up Wednesday

27 September

I've decided to link up to some other blogs on occasion. It's nice to have a topic to ramble on about, and see what other blogging mommas are rambling about too. 😉

This link up discusses these questions:

WHAT WE'RE EATING THIS WEEK:

Sheet pan dinners are my favorite thing. Everything all mixed together on one tray? Count me IN.

WHAT I'M REMINISCING ABOUT:

At this time last year, we were still cleaning up from this mess. Thankfully in September of this year, we were swimming in that pool and boating on that river. What a difference.

WHAT I'M LOVING:

This girl's smiles and energy. Since her transfusion, she has decided that she wants to move-something that she had completely given up on for awhile. She's pushing herself backwards and spinning in a circle during tummy time, trying to go from sitting down to her stomach, and moving around in her walker (still backwards though). We love watching her try to get moving!

WHAT WE'VE BEEN UP TO:

All things outdoors! The weather has just been amazing.

WHAT I'M DREADING:

Being a single mom for two months. While harvest time is fun to watch and the kids love riding in the combine, it's hard not having Ben around.

WHAT I'M WORKING ON:

Canning tomato sauce. Our tomato plants produced TONS of tomatoes this year!

WHAT I'M EXCITED ABOUT:

Fall decor. I love changing up my decor for the holidays, and fall and Christmas are my favorite holidays to decorate for.

WHAT I'M WATCHING/READING:

Entering into the world of constant medical appointments, uncertainties, and difficult choices is not easy. It's always a comfort to read books like this, and find that I'm not alone in feeling the hopelessness, anxiety, and torrent of emotions that accompany having a child with special needs.

WHAT I'M LISTENING TO:

Grace absolutely loves the music from this movie. Either I'm listening to her sing it while she plays, or we put it on and have a dance party.

WHAT I'M WEARING:

Lots of cardigans. It's that time of the year when it's chilly in the morning and warm in the afternoon, so cardigans to the rescue. This one is my favorite right now.

WHAT I'M DOING THIS WEEKEND:

Heading to the apple orchard for some fall fun!

WHAT I'M LOOKING FORWARD TO NEXT MONTH:

Halloween! Grace asks me every day if it's Halloween yet. I'm thinking we may need to make a countdown chart for her.

Bonus question: What TV show are you most excited about this fall?

These two shows. I LOVE THEM.

Everyday Life

Life Lately

25 September

We were given a little extra summer warmth these past couple weeks...and we've been soaking it up. We've been swimming, tubing, swinging, and playing outside every chance we get- because that crazy cold Iowa weather will be here before we know it.

Tessa

Tough Like Tessa

15 September

Tessa has been doing great lately! She definitely has more energy with all the extra blood from her transfusion. Although her body had learned to compensate at such a low level and she wasn't necessarily fatigued, I can see now that she really wasn't feeling great. Even her little personality is showing through more...and baby girl actually does have quite a bit of sass and silliness.

She had her blood drawn on Tuesday and her hemoglobin was 7.4, so thankfully it has remained stable since her transfusion. She's scheduled to receive more sclerotherapy on Wednesday. She handled the last treatment really well, and was able to go home just a couple hours after it was finished, so hopefully it will go just as well this time!

This was her blood transfusion. Not going to lie...it was pretty gross to watch (which is clearly indicated by my face below). It took about 3 hours for all that blood to make it's way into her little body. She was such a champ during the process.

And then it was back to normal at home, and we were all enjoying watching her want to explore her surroundings more.

Tessa's physical therapist brought this to try and get her to put some weight on her legs. She'll stand in her walker or exersaucer, but she doesn't really get the feel of "walking" when she's in them. Hopefully this puppet contraption will encourage her in that direction. So far she thinks it's pretty fun, and it gives my arms a decent workout. #winningallaround

Thank you for your continued prayers for our sweet girl. There are so many unknowns and uncertainties with her condition, and at times that can feel overwhelming. But we're ever so thankful that her Heavenly Father, the one who created her, knows all of the

"unknowns". So we continue to put our trust in Him.

Newer
Stories

Older
Stories

Pages